Brooke Eby Dies at 37 After Sharing ALS Journey as followers remember her advocacy and openness worldwide.
Brooke Eby Dies at 37 After Sharing ALS Journey
Brooke Eby Dies at 37 After Sharing ALS Journey, leaving an online record of her life with ALS and advocacy.
The Potomac native died October 1 after documenting her experience with amyotrophic lateral sclerosis online.
Eby was 37 and received her ALS diagnosis in March 2022, following symptoms that began years earlier.
Her social media posts combined humor, personal updates, and practical explanations about living with a progressive disease.
She built hundreds of thousands of followers while openly discussing mobility changes, communication challenges, caregiving, relationships, and daily routines.
Eby Documented Her ALS Experience
After receiving her diagnosis, Eby began sharing videos under the online name Limpbroozkit across social platforms.
She used humor while discussing difficult subjects, making her experience accessible to viewers unfamiliar with ALS and its challenges.
Her audience grew substantially as she continued documenting changes caused by ALS throughout her final years.
Eby also explained that ALS can affect people across different ages and backgrounds through personal experiences online.
Her Health Changed Over Time
Over time, Eby’s condition affected mobility, breathing, speech, swallowing, and her ability to communicate with others.
She eventually relied on a wheelchair and adaptive technologies as her physical abilities changed significantly over time.
In September, Eby said her speech had deteriorated rapidly, making conversations increasingly difficult for people around her.
Despite those challenges, she continued creating content and discussing her experiences with followers during her final months.
ALStogether Expanded Eby’s Advocacy
Eby founded ALStogether in 2023 to connect people living with ALS, caregivers, experts, and community resources.
The community helped members exchange practical information, support, and experiences while living with ALS together.
Her advocacy extended beyond social media through fundraising, public speaking, research participation, and partnerships supporting ALS communities.
She also collaborated on adaptive clothing designed around challenges she personally experienced while living with ALS.
Recognition Followed Her Advocacy
In March 2026, the ALS Network recognized Eby with its Advocate of the Year award for advocacy.
The recognition highlighted her work raising awareness, building community, and supporting people living with ALS nationwide.
Her death followed four years of publicly documenting the progression of ALS after receiving her diagnosis.
Eby’s Online Legacy Continues
Eby’s videos remain a detailed visual record, offering viewers insight into everyday life while living with ALS.
She previously hoped her social media presence would remain useful for people receiving an ALS diagnosis later.
Her approach showed audiences personal realities behind diagnosis while creating connections among people facing similar challenges.
Brooke Eby’s death closes her personal journey, while her digital work continues through communities and resources she created.
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